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weekends with autism

The Cool Mom.

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The Cool Mom.

Last weekend, my wife confirmed for our children, that she is, in fact, the cool mom.

How did she do that? You ask?

She brought home nerf guns.

Let’s back up.

About two years ago, we were Christmas shopping, and she wanted to get the boys nerf guns. My disgust clear across my face, I factually pointed out that all the packages state for 8 years old or older, and that ours weren’t even 1/2 that age, so it would not be in our best interest to gift them to twins whose excitement matched with aggression on a holiday morning would simply mean any fragile decorations I’d put at a height they could not reach, would most definitely find peril.

That shopping trip, I won.

Last weekend, when Jack let Steph cut his hair and trim his nails, earning him a trim to the oh-so-wonderful-Walmart, he pridefully came up the basement stairs yelling “Mommy! Look what Mama let me get!”

She followed behind him grinning, ear to ear, excited to introduce our kids to the amazing battlefield of rush that styrofoam pellets aimed at you at a speed to fast for 5-year-olds should be.

Jack rushed to his siblings, making sure they each got their gun and stash of ammunition, and all three kids followed Mama eagerly to learn what to do.

She walked them through it, and I simply sipped my coffee in the kitchen quietly, watching their eyes follow her ever movement, hanging on her every word in amazement.

The only one to get injured that day was me.

The only one to pick up the hundreds of darts shot, was me.

I am the Mom who cleans up the mess.

I am the Mom who is the target.

I am not the cool Mom, when she puts the darts up high above the kitchen cabinets because she’s tired of cleaning them up.

I am also the mom that at 5am the next morning, when Jack was desperate to play with them again, said, “Mama will be so excited to play with you when she wakes up, so let’s wait for her.”

I could have tried to be cool at 5am. I had been up for an hour, and had a cup of cappuccino- cool was technically possible.

But that’s the thing.

There can’t be two cool moms.

So all week, when they wanted to introduce their friends to this amazing new world Mama gave them, I left it for her. I let her look like the coolest Mama there was.

Because she is pretty cool.

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At one point I asked her, after I’d cleaned up the darts for what felt like the 100th time, why on earth she thought this was so cool. (Again, I’m not the cool mom.)

Before I could lecture her on how scary it is to teach our children about guns she stopped me.

“If we had a gun in the house, I’d never get these for them.” she said.

She then pulled the ultimate excuse, that’s impossible to fight. “I never got to have this stuff as a kid. I just want to have fun with them.”

Ugh.

This is why she is the cool mom.

We will continue to have conversations with our children about guns, and ensure they know to never touch a real one… but for now… the cool mom is enjoying teaching them about aiming at a target, and how to breath and relax their bodies to really focus in on what’s in front of them. She is filling our house with laughter and play, and giving the kids memories that are happy and filled with joy.

I’m not really sure I’ll ever be the cool Mom.

I’m the worrier.

The keeper of all information.

The one who knows every teacher, aid, nurse, school administrator, doctor, and adult who works with our children on a regular basis.

The one who knows which twin wants veggie sticks in his lunch, and which one wants cheezeits.

I’m the mom who makes sure the medicine gets taken every night and every morning.

I’m the mom who gets up early every morning for the snuggles on the couch, and holds Jack’s hand while reading him a story as he falls asleep at night.

Not a lot of room left to be cool.

But that’s ok.

Because the cool thing in our family is… they have two moms, so we don’t both have to be cool. I mean, we wouldn’t want to spoil them or anything.

To all the non-cool parents out there: I see you. Kudos on letting your partner bring the fun to the party. I’m with you on clean-up duty… because to us, happy kids and a clean house is cool enough, isn’t it? XO

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Sink or Swim

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Sink or Swim

Sink or swim?

I feel like when it comes to parenting, I’m constantly asking the question, will they sink, or swim?

Having worked to teach our twins to swim over the last two summers - yes, I said TWO summers, it’s left me reflecting on the concept of sink or swim- and how our parenting prepares them for life.

Raising differently wired children, one of the most comforting comments we’ve been told is that eventually, it will just connect. Maybe their wires aren’t there to begin with, the way a neurotypical child’s are, but the beautiful part about watching a child with autism piece their own wires together is how they study a situation, completely unaware they are in it, and work their way through it, to make it work for them.

Last year, we had asked a neighbor who taught swim lessons, to come by the pool, and work with us to get the twins off their floaties. Mrs. Pickle’s made it a game, which fascinated Jack immediately, as she threw all of his small little people plastic toys around the pool, encouraging he scoop them up the way you scoop ice cream, curling your fingers towards your palm, and rescue them to safety. This game intrigued Jack into participation, but simply did not impress Luca. We continued with Mrs. Pickle’s methods for the remainder of the summer, but were unable to get Jack out of the floaties, never mind Luca.

This summer, about half-way through, Luca became far more interested in sea animals, watching every video he could on them, and thrilled each time he watched a friend jump into the pool - particularly with the excitement in their eyes before they escaped under water. At first, he would jump into my arms in the pool, with his floaties on. And then one day, he asked that we just take them off. After about an hour of swimming, he had made the connection that had been missing last summer, and focused on the thrill of experiencing the underwater life.

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But then, when Steph purchased new goggles, it was a game changer. Luca realized he could see under water, and then never wanted to come up for air. The first day he discovered he could swim under water and actually see the entirety of the pool, he began to hold his breath for 15 seconds, only coming up for a gasp in order to return to the water below. It took about a day or two of exploration before he decided he wanted to get from place to place, and worked on moving his body to get around the pool.

Just like that, we had a fearless swimmer, who was happiest under water like a scuba diver.

Jack watched his brother accomplish this quickly. He had taken his time learning the scooping method, and how to kick to go faster, but wasn’t quite ready to let go of his floaties. A week into Luca’s new freedom, Jack decided that he would like his floaties unbuckled, where he hung on to the vest of them like a noodle, staying by the steps of the shallow end. It took a few days to be comfortable with this new bravery, before he decided to stay on the steps without them. He also practiced with goggles to put his head under water, little by little, before he was comfortable enough to really swim. Just last weekend, he discovered that he enjoyed swimming underwater, and that if he stayed near the edges, he could pull himself up if he got tired. As he grew in confidence, he remembered to “scoop” the water like he had been shown, to help him swim further each time.

Two boys, born merely minutes apart, and completely different paths to the same out come.

Their little sister, neurotypical until we are told otherwise, has watched their aqua accomplishments, and has decided that she too, can explore the water equally. Although we accommodated by holding her in the water when we are swimming with them, she has not realized that she has yet to learn to swim.

Just yesterday, as she watched them joyfully splash, she walked down the steps of the pool. Both Steph and I said, “Alex stay there please” and “Stop” as we rose to our feet having not yet gotten into the pool, expecting to put her floaties on her. Her feet continued down the steps, and her head dipped under the water. Right behind her, I pulled her up, and looked at her blank expression of shock staring back at me. She wasn’t scared, as much as confused because as far as she could tell, she had done exactly as her brothers, but met a different result. One that ended with her fully clothed mother holding her waste deep in the pool.

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In that moment, the concept of connecting wires on their own, vs having the wires set in the first place, really resonated for me. Alli learns by watching others. From the youngest age, she’s been able to naturally do things, without hesitation or question. Things that never connected for the boys, and some still have yet to. But in this moment, the boys flourished in learning how to do something at their own pace, in their own time, and with such pride and joy that she felt fully capable to do so too.

As parents, I feel like we’re constantly wondering - will they sink or swim? Do we give them floaties, or let them figure it out? Do we need to ask someone to help teach them, or can we do it ourselves? What’s the right balance? Throw them in before they are ready, or let them take their time?

Pretty sure the jury’s still out on that one for us. But I can say that in those moments that you get to watch a child flourish, it’s wildly beautiful, and completely satisfying as a parent. Alli may have learned that she wasn’t ready yet, but she believed that she was her brother’s equal, and we were a moment behind her to pull her to the surface, so that the lesson wasn’t a much scarier one. Maybe that’s the balance in it all. Teach them they can do anything, fearlessly and foolishly when necessary, and be there to scoop them to safety in the moments when needed to avoid detriment.

Here’s hoping balance finds you as you are helping your littles (or not so littles) to sink, or swim. Xo

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Papa's Beach

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Papa's Beach

“You can never cross the ocean until you have the courage to lose sight of the shore.”

One of the silver linings this summer, after becoming a full-time stay-at-home parent, was extra time at my favorite place, and watching our boys learn to love it as much as I do.

Our family’s small cape cottage is located steps away from Onset Bay’s shore line. Only a few houses, and cobbled steps stand between the perfect porch to sit and watch the day go by, and a beach where hermit crabs and minnows could provide hours of entertainment for the dozens of Aprea cousins that filled my childhood summers.

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Yes, for our boys, it was a little different this year… as the cousins and we did not adventure together, finding separate days to visit our quintessential happy place, respecting quarantine guidelines… but the memories created still felt the same.

Where we used to only be able to visit on a weekend, or an intentional vacation day over the last few years, this summer provided open-ended opportunity to call up Auntie Sammy and Papa and ask for a few hours together playing in the sand, and walking the pebbled shore at low tide.

This last visit, before the summer days come to an end, and school returns to session next week, was different than the many over the last few months, as our bay was covered in fog, and storms continued to roll through.

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We explored the shells at high tide, walking the deserted beach with the boys.

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Although our visits to the beach typically last only a couple of hours, and we spend more time in the car then we do with our toes in the sand, my heart is full as I sip my coffee and share this with you. Those hours of unexpected memories in my favorite place are irreplaceable in what they did for my soul this summer, because they reminded me of the magic of “Papa’s Beach”.

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As the daughter of a sailor, if I’ve learned anything from the ocean over the years, the first line of the post rings true: “You can never cross the ocean until you have the courage to lose sight of the shore.”

This last year’s adversity has served as a defining moment for our family, and for my parenting in particular. Autism’s shore line provided a stability in routine and depending on the boys’ teachers, administrators, and aids to guide us on how to navigate parenting autism. When that was removed, there were days that I felt like I was lost at sea, without a life boat, or even a life jacket, treading water in exhaustion and fear.

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But once I stopped fighting the change that was drowning our need for relying on others to teach us on how to be there for our children, I found my courage to stop looking back at the shore line, realizing the muscle memory could kick-in long enough to start to cross the Parenting-Autism-Ocean of unknown again.

Returning to the beach gave me quiet time in the car, most days, where I could put in my airpods and listen to an audible book, or a spotify playlist that didn’t consist of “Who let the dogs out” or a Disney Playlist, and I could take in an ounce of self-care.

It gave me time with my sister and my father, and occasionally, my step-mom and brother. Although we all weren’t together with the dozens of cousins and aunts and uncles like we’d prefer, particularly after losing Nana, it still provided the comfort of just being around them, and continued opportunity for our children to know them.

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Trips to the cape gave us an escape, the three musketeers that we were, with an unknown structure that had flexibility and lacked expectation. If it was a great day, and everyone was happy, we could stay as long as we liked. If it was a tough day where the twins weren’t having it, we could simply be proud of the attempt, pack back up in the car, and head home.

Returning to “Papa’s Beach” as the boys fondly call it, reminded me that even on the gloomiest of days, when you can’t see past 20 feet in front of you, all you need is time for the storm to pass, and the shoreline to appear again. Courage isn’t always just about being able to leap into the next adventure, but also to remember where you’ve been, and how far you’ve come.

Here’s hoping courage continues to find you, too. Xo

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Raising the Wild...

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Raising the Wild...

To the ones raising strong-willed children, who have big feelings but haven’t fully learned how to work through them yet, during this “unprecedented time” of social distancing and quarantine… this one’s for you…

We made it through our second week of home schooling for our twins this week, and I’m wiped. Going into the self-quarantine, and taking on working from home while trying to home-school three kids under the age of five (with help), I naively thought my greatest challenges would lie in working with Luca, and meeting his needs in the dependable way his teachers do at school. He has a team working for him five days a week, observing, evaluating, and attending to him during school hours in ways that I had no idea how I’d be able to while at home. I worried about his aggressive outbursts, and how I’d manage them in the hours I would be outnumbered 3:1, especially if they got more frequent with the lack of scheduled activities and individual attention his aid gives him.

But ya’ll… NOT EVEN CLOSE.

I’m exhausted.

I’m fried.

I’m wiped.

Not because working with Luca to meet his needs hasn’t taken energy- it has - but he’s been awesome, and receptive, and worked on using his language in ways I wasn’t able to experience before. It’s actually been incredibly rewarding.

I’m tired, not because our toddler, Alex, who is missing daycare and friends in her expected neurotypical fashion, and is needing extra attention because others are not seeking hers in the classroom.

I’m worried about how long the status quo is going to last in our new normal because lately, I feel like I’m…

Raising the WILD.

No, seriously.

Our sweet, caring, and completely impressive boy, Jack, is so strong-willed that I think he might break me. He questions everything all day long. He’s the first to rise in the house, pulling me out of bed before the sun’s come up- and quite frankly- far before anyone else in our household is willing to join him.

I’ve shared how he feels big feelings, but, lord give me strength, his feelings since not having school and connection to friends every day are MASSIVE. They span the open dessert for miles and miles and the suck up every breath of air I have during the day.

Our nanny and I will set up the lessons for the day, and just as we’re patting each other on the back because it’s going well, it’s like his time of the month hits and just because Luca is enjoying it, it means he can’t, and we’re completely derailed.

Every time he decides to share these feelings with our social distanced world, they hit a volume that I swear pulls our neighbors into our bubble, despite that we are acres away from them physically.

And lately, the following tools are what we are focused on having him master:

  • Gentle Hands

  • Teasing isn’t Kind

  • Soft Voice and Open Listening Ears

  • Space is Kind

That is the nicest way I feel like I can frame for you the constant tackling of siblings with strength that can hurt and injure, the need to push every button Luca has, the volume of his whine, and the refusal to read the room when someone doesn’t want him on top of him, in case he were ever to read this one day.

Ya’ll…. even when his sister is napping and it’s the nanny and I with the twins, and one on one time is available, it’s still our biggest challenge.

At one point this week, when we learned that schools were indefinitely closed until at least May 4- but let’s be realistic, most likely the rest of the semester - Jack and I were already having a tough day. His anxiety was high, and even though he had had BEAUTIFUL moments throughout the day, when he was able to name his feelings and work through them, or ask for help when needed - I was FRIED, and more so with not having a date at which I needed to make it to, when we could all go back to the normal we so desperately miss.

After I finally got him to bed, during not the easiest bedtime routine, I snapped at my wife, and even went upstairs to take some space of my own. After putting away the laundry that had been haunting me all week, sending the emails to the kids teachers with photos of proof of what’s gotten completed throughout the day, and completing a few business-related tasks for my wife, I finally made it to the shower. I could feel myself relax, had a decent therapeutic cry, and when I finally made it to my pajamas, I could hear my father’s words from the speech at my wedding ring through my ears: “she had a flair for the dramatic”.

I winced.

I laughed.

I smiled, remembering the adoration he had in his voice when he said it.

And then I looked up to the heavens and said “Dear Lord, please don’t let this be my karma.” I’m going to naively continue to live in denial thinking he was merely referencing the many performances on stage he watched during my short-lived theatre career and that 4-year-degree as a Theatre major he helped to pay for. (Humor me!)

Here I was, week two of quarantine, feeling pretty lousy in a pity party of exhaustion, and I was acting like my four-year-old child to my adult spouse. I hadn’t gotten a chance to shower that day, so I wasn’t feeling like my best self to start. I was hungry, because I had maybe been able to snack throughout the day, but despite getting dinner on the table for her, never actually got to eat myself. And the glass of wine that I had on an empty stomach was definitely not the wisest choice.

I was having BIG FEELINGS, and not able to deal with them.

I wasn’t using my words.

I wasn’t asking for help.

I wasn’t owning how the quarantine was making me feel. I missed my family. I missed my friends. I missed my spouse. I missed my freedom when all three kids were at school. My anxiety was through the roof, and hadn’t had a break to speak to the one person who for 45 minutes only cared about how I was doing, and let me talk about anything I needed to say. And I was ASHAMED I was having those feelings.

Just earlier that day I was talking with a friend I admired and cared for, who was working through her anxiety about leaving her family every shift, to work in the NIC-U as one of the most heroic nurses I could think of. Her anxiety was real. Mine was selfish and unplaced, and I was disappointed in myself that I wasn’t able to handle things better for Jack that day, or with my spouse.

What’s going on in the world is “unprecedented” - this term that is making so many of us roll our eyes because it does nothing to reassure us that the worst isn’t the yet to come. The unknown makes things feel hopeless and doomed for worst case scenarios in ways that can make us feel unhinged.

Imagine what it feels like for our wild ones, who haven’t been able to fully comprehend the social stories we’re trying to give them to understand why one day they were living their best lives, and the next day they were told they couldn’t see their friends, learn with their teachers, and play in public places or intimate play dates.

If we as adults, with decades more life experience than our kids, are having a hard time, then maybe we can find some grace and perspective for our littles who only know one way to feel.

If you are raising the wild-hearted, passionate, and dramatic at times souls that I feel like we are in Jack, I need you to hear me when I say, YOU ARE NOT ALONE. This is hard, ya’ll. None of it is easy. But having the unruly who can’t comprehend the simple requests that could make life “simpler” during a difficult time, like “keep your hands off your sister”, or “please keep your voice down”, or “stop teasing or he’s going to beat the crap out of you every time! (no one else? that’s just me? oh, well, ok then… ;p )… and maybe are asking “why” 1,000 times a day because they actually want to learn why something is happening during a time they just can’t understand… YOU ARE NOT ALONE.

The one driving force to my staying sane as I manage all the BIG FEELINGS going on in our household during quarantine, social distancing, and homeschooling, is that something I assume about most of the kindred spirits in my life, who I rely on to keep me steady during turmoil and chaos, inspire me to be a better person because they expect more of me, and are passionate game changers leaving an impactful footprint on this world.

As the week continued, when Jack was overly loud, or extremely needy, or beyond frustrated- I focused on what I’ve found to work from him in the past: we talked through feelings, used token boards where he could earn a preferred activity once he tackled a wanted behavior five times, and used books and songs to understand why we feel certain emotions throughout the day. His favorite, is “Belly Breath” by Common and Colbie Caillat, in case you have a child that might be interested.

Instead of Jack being able to just say “I’m ANGRY”, or “I’m sad”, we worked on adding the “because…” to complete the sentence. By the end of the week, although the tantrums were still at large and the behaviors continual, he was able to express why he was feeling how he was feeling twice on Friday, and even shared with Luca that he needed to “belly breath” because he was “so mad he could not be kind” - his words, hand to God.

I have no idea how long this new normal is going to last. There are days it feels like we are living in Hunger Games or The Maze, and it’s all some kind of Big Brother experiment. All we can do is continue to hope for warm weather where our children can run the wild out before it takes over our sanity. As parents, my wife and I are focused on trying to give Jack the tools he needs to harness that energy and use it for good one day.

With no control over how many more tantrums are in store for us during this new season, or “accidental” injuries are caused to his little sister when he plays too rough, or buttons he pushes with Luca that initiate aggressive reactions… I have little advice on how to navigate the unknown while raising the wild in this different time. But what I can share, is that YOU ARE NOT ALONE, and let’s hope that all of their determination stays strongly grounded in their souls, and used to change the world for the better one day, because as a parent who is dealing with it hourly - trust me when I tell you, it’s not something you want to reckon with.

I look forward to witnessing their passionate advocacy, creatively found solutions, and unwillingness to give up on what they care about, for they are who will be our mark on the world, as we were the ones responsible for raising the wild.

Xo.

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Five Powerful Things

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Five Powerful Things

Here are 5 Powerful Things I’ve Learned From My Kids During the First Week of Quarantine

It feels surreal that we’re about to start week two of Quarantine for COVID-19 in NH. (Yes, technically I guess we started this morning, but for most parents I feel like Monday morning is when it feels like it REALLY starts.)

As I think about the first week of quarantine, bracing myself for week two of only heaven knows how long of a quarantine session, I’m trying to focus on the incredible learning experience this is as a family. Here are five powerful things that I learned from my kids during the first week of quarantine.

1 .) The Power of Positivity: Despite the unknown disruption to our three children’s schedules, the smiles are still present. For the twins, routine is key to happiness, and they’ve had to find moments of unexpected happiness in dealing without a solid routine.

2.) The Power of Great Leaders: Each morning, when Jack expected to be able to school, particularly near the beginning of the week, his first response each time I explained he wouldn’t be able to go, was the same: “But Miss Kelly will miss me”, followed by “and Miss Shannon and Miss Sabrina” - in the order he sees his teachers each day. The first thing he misses when he realizes he can’t go to school are the incredible educators who would have taught him something new that day. He misses their lessons, their kindness, their encouragement, and their friendship.

3.) The Power of the Bubble: I will admit, my wife and I have probably tuned into the news far more in the last few weeks then we have in the last few years. Not due to lack of interest, but more due to the children dictating what goes on the television. However, this week, each episode of the World News with David Muir has been saved to our DVR, and as often as we can we’ve been tuned into the Corona Virus task force updates. Like so many, it’s weighed heavily on our hearts as we comprehend what’s going on in the world today. But, as heavy as it is, the moment the news is off, our children pull us back into our bubble, demanding a juice box or a story to be read; asking to play hide and seek, or play with “sea animals” (Luca). Our amazing little bubble, the one that if we can just protect, keep safe, and keep surviving for, keeps us grounded enough to keep moving forward.

4.) The Power of Simplicity: The incredible parents who have tackled homeschooling their children with flair and pintrest worthiness, I say: KUDOS. I’m thoroughly impressed by the many videos and images being posted of all the intricate activities and lesson plans parents are pulling off, WHILE working, mind you. Ya’ll… I am not going to lie: even WITH help this week, I did not get any homeschooling done. We took the week off. Luca wasn’t feeling well for the first few days, I was trying to educate Jack that working from home for Mommy meant that Mommy actually had to work, while keeping a Toddler entertained. We were lucky to have smiling faces each day. What was amazing was that the kids didn’t really care. They liked that we kept it simple and gave them choices. And although our amazing nanny is ready and willing to get us on track for homeschooling tomorrow, I have a feeling we will maintain the “keep it simple” mentality - for both the kids, and ourselves. If I’m not careful, I’ll get overwhelmed and waste time worrying about what I can control. But if I keep it simple, focus on the tasks at hand like getting my hours in for work, getting the kids onto a new routine, and just making sure the conversation has important lines of communication stay open to address needs from everyone, I feel like we can at least survive one more week. (Let’s hope!)

5.) The Power of Friendship: Even for our introverted boy, it’s beyond clear that he misses the companionship of his friends. Although Jack and Alli have each other, and have been truly enjoying their new classmates, they each miss their own people outside of this house hold. For the twins, Facetime does not cut it. Don’t get me wrong, we’ve Facetimed almost any and everyone we could, and they are thrilled to see themselves on the camera. Each time we get off the phone, particularly with those they really miss, they say it isn’t the same. Just today, Jack said to me how he missed two friends, because they were “nice to him”. They miss the feeling of being with someone you care about does for your heart. And although we’re grateful for technology that keeps us connected to those we care about, I can’t wait to see the faces of these kids when they get to be reunited with those that warm their hearts. I feel like it’s going to be epic!

What powerful lessons did you learn this week? Feel free to share! Would love to learn from yours too!

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And then, there's Alli...

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And then, there's Alli...

More often then not, when I share our journey with Autism, I’ll write in detail about Jack and Luca, as the diagnosis with Autism lies with them. But really, it’s all of our journey with autism. Not just the twins who are navigating each of their unique diagnosis, or us as their parents learning how to parent it every day… it’s her’s too.

Alli is neurotypical, at least from what we know so far. She’s spunky and sassy, and sweeter than sugar. Girlfriend has a waddle that puts a penguin to shame, and a heart of gold that can melt any of your worst fears away. She loves to go to daycare with friends, can’t only have one oreo - ever - and has a sweet spot for her Pop Pop, in a way that she never holds back from him.

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When Alex is sick, all she wants to do is snuggle on the couch, and although she’ll chase after her brothers like the best of them, she’s also more then content to get lost in a good movie. When she’s hungry, she’ll eat anything from a cheese stick and raisins, to carrots and chicken, to won ton soup and crab rangoon - no limitations or hesitations on anything we put in front of her. She takes medicine when she’s told, especially when she doesn’t feel goo, and she’s slept through the night since 2 months old. When Alli wants something, she asks for it, and if you can’t understand what she’s telling you, she brings you directly to what she wants until you can figure it out long enough to get it for her. And Alex understands when something is not “safe for her body” without too much fuss or an argument, or our needing to remove her from a situation so she doesn’t hurt herself. Don’t get me wrong, she is a toddler, for sure, and there are caveats to everything listed above, but she’s a typical toddler, something that was foreign to us before our rainbow baby.

She’s our third child, and like most third children, she gets the benefit and the cost of having older siblings. She has tiny humans to learn from, and parents who aren’t on their first go-around, but she also gets less of the excitement when she accomplishes a first, and less of the individual attention. She has best friends at her disposal any hour of the day while at home - which right now, during COVID19’s quarantine, is incredibly handy - but she also has two other humans vying for her parents attention at all times.

She is neurotypical, and because of that, she’s provided us a different understanding of parenting, as we know she comprehends things that her older brothers cannot, and handles things differently as a whole. Although we treat all our children equally, the boys autism has taught us about certain comfort levels for foods, sensory overloads, learning, social settings, etc. For Alex, we’re learning, she’s pretty easy going, and outside of asthma and age appropriate bouts of stranger-danger, hasn’t really shown to have situations we need to prepare for every day like we do with the twins.

Where they excel, in certain areas of their magic, she may never thrive. She may never know the 80 different types of sharks that live in the sea (exaggerating on the number), or every line of the Big Bad Wolf in the 20 different adaptations there are out there. She may have to study really hard for a test, where her brother(s) have heightened memories and can remember anything from reading it once. She may thrive in social settings, have great groups of friends, and find that social interaction gives her great satisfaction, when her brother(s) may find great comfort in one or two friends instead.

I wonder what this will be like for her when she grows up. I wonder how this will shape her life, having two autistic brothers. I wonder what her perspective will be. I believe this child will be an empathic, someone who will be a caretaker, both in her field of employment, but also in her personal life. How could she not, growing up in the life that has chosen her.

Although I wonder about all the possibilities that could make her life full, and wonderful, there is a part of me scared to admit that I wonder about the chances that could make life feel like less, and potentially, resentful. Even the loveliest of human beings are human. Like in the amazing movie, Wonder, during the scene where the older sister admits that her parents never had time for her, and even those she loved her brother more than anything in the world, it could make her feel very alone at times- I worry that Alli could be sad that the twins require so much of our time.

I think, for all our children, all we can ever do is try our best, and hope for the best, while remaining aware and in tune at all times. This happy-go-lucky toddler provides no room for concern at the moment, and very well may read this one day and laugh at my “worries and wonders” because they were for no reason. At least, I’ll take comfort in that hope for now, continuing to share Alli’s story as well, because I do think it’s an adorable, important, and instrumental part of our journey.

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Connection...

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Connection...

Connection…

Over the last few days, I’ve had Ryan Tedder’s words ring through my head… “Can I get a connection, can I get, can I get a connection… I can see it in my, see it in my reflection… Oh, can I get a connection?”

Ya’ll… we’re oversaturated in learning so much about the current pandemic of COVID19, that it’s hard to think about anything else. As humans who crave that human connection from others, social distancing is something that is scaring some into seclusion, while being ignored by others who aren’t giving it the weight of seriousness it deserves. As parents to autistic twins, one of which thrives from other social interaction, and one of which who could care less if he has it, we can see so many perspectives on the state of our country, and how it impacts our family, and those around us.

As I scroll through my social media feeds, I’m seeing the following…

Friends laid off because they can’t work as schools and public places are shut down. These same friends have families to provide for, and responsibilities to take care of - a heavy burden to bear while in this heightened state of anxiety while we watch the nation’s crisis unfold before our very eyes.

Friends doing the laying off because their organizations cannot withstand the financial hit the pandemic' and the quarantines it is requiring to stop the spread are causing. These friends are doing incredible good for our world, and did not wish to lay off the hard working employees who have given their organizations so much of their time, energy, and commitment.

Friends who work at our bars and restaurants, places where so many of us go to get away from our lives for a night, where someone else waits on us, answers our every request, provides us food and beverage, and often listen to our problems which are not theirs, just to make us feel better - who don’t know what the status of their crucial income will be during the quarantines.

Friends who are parents who are preparing for the home school that will need to happen during the two (or three in our case) week period where their children are home from school for quarantine; trying to understand how to best meet their needs for learning and routine and social interactions crucial to their continuing to grow, while working to earn a living that makes all of that possible for their children. We are in this boat.

Friends who work in our healthcare system, are first responders, and fire and police officers, risking the front lines each shift, to take care of those in need, protecting those who need protection, while aware of their heighten chance of exposure, and the chance they bring it home to their families.

And then I see the response the virus that isn’t serious, and I think about my friends that are listed above, dealing with how the pandemic is effecting their lives, who are also witnessing messaging that may feel like it’s downplaying said impact, or even worse, mocking it.

I’m not here to preach, each effected by the status of our current situation as a world is to deal with it however they can, in whatever way they need to. Hey, we have a son who laughs when he has hurt someone because he hasn’t learned how to deal with shame or regret. We understand first hand how everyone deals with emotions, and how they express them, differently.

All I’m saying is, as we look towards the ever important “connection”, particularly while our world is in crisis, that maybe we should be careful about what connections we are putting out there for any and all to reach.

An incredible human being - like seriously one of the best - named Nancy Lyons, for whom I have the utmost respect and admiration for, went live to Instagram yesterday, and her REALLY COOL company, Clockwork, gave a recap in this article about Social Distancing with Humanity, on ways we can provide connections to those who need it - without compromising others. Check out the list of really smart ways we can provide that connection we’re all craving, and add yours to the list!

Here are a few ways that we intend to connect over the next three weeks, as our children’s school was required to shut down until April 3, and it will require a new way of operating as a family until next month.

1.) ROUTINE CONNECTIONS

Our twins are on the spectrum, so they survive off of routine, but even their little sister Alex finds greater success each day when she knows what to expect (schedule-wise), what’s expected of her (behavior-wise), and when she will get the things she needs each day (food and rest) outside of the social interaction from peers. As we are under quarantine- social interaction in person is a hard stop- but, like we suggested for Clockwork’s list- Facetime play dates and check-ins are definitely something we can arrange, and have begun to do so. Whether it be virtual story-time, or a game of iSpy, there are different ways that we can use Facetime to feel like we are playing with friends without losing out on that in person connection gratification.

2.) NEW CONNECTIONS

I noticed on our town’s Facebook group, that the local senior center was requesting if kids wanted to be pen pals to their residents. My kids can’t write, but they LOVE to send video messages, particularly when singing Happy Birthday. I messaged their director, offering this, and am working to have them sing Happy Birthday in individual messages to anyone that might be celebrating a birthday but can’t have outside visitors.

3.) AVAILABLE CONNECTIONS

I’m going to rely on visual schedules, online guides to activities, pinterest boards for how to make something from nothing, and any resources their teachers provide to keep up with the twins IEPs in order to fill the kids days with on going learning and fun. The amazing @MrsRachelHollis preaches that you can learn ANYTHING with a google search bar and a growth mindset, so this month, I’m going to learn how to be what my kids need so that the learning does not stop, and that this doesn’t become a miserable experience for all of us. Hopefully, in that process, as I continue to gain appreciation for everything their amazing teachers and administrators are, I may gain additional appreciation for myself, and the ability to show up as the parent they need, during their time of need.

4.) PERSPECTIVE CONNECTIONS

This is going to give a LOT of quality time with my kids over the next month. My wife’s company will continue to operate in the homes that are willing, as her employees need the hours, but the majority of the time I’ll be with the three babes. These are moments I’d miss out on without this opportunity. This is a gift. Where some are looking at it as a disaster, I’m hoping considering this perspective will help change some of that. Yes, no one is saying this will be easy, and it’s SUPER easy to have perspective when you haven’t even hit day one yet, BUT as a reminder - there are too many parents who would give anything to get time with their kids like this. There are too many parents who have lost their children to difficult battles with fatal diseases, or tragic accidents, that would give ANYTHING to be forced into quarantine with their children for three weeks. This is a gift. A chance to know them better. A chance for them to know me better. A chance to roll up my sleeves, tackle this ABA thing, work through all my anxieties, and show up for my family. This is a gift, and one I am grateful for.

5.) HELPFUL CONNECTIONS

One of the best messages I’ve seen come across my feed, and have gone on to share, as well as watched friends then share from my feed, is the offer to help anyone who needs it. We do not have an endless supply of toilet paper or food, but we can easily share with those who need it. We may not be able to offer child care (because I’m still figuring out how to go solo for three kids, two with special needs) but we’re happy to be Facetime buddies with your kids to help with boredom or joint home school lesson planning. We may not have hours on end to help a neighbor with all their errands, but we could easily find coverage for an hour or two to ensure they have the groceries and medicine they need by running to the store for them and dropping the items off if they are unable. And for those friends suffering from anxiety like I do, or working through something they just need someone to talk with about, but can’t make it to a licensed therapist during quarantine- by no means do I have a license, but I do have air pods, and a great sense of empathy from experience, and would be happy to be your listening ears at your time of need.

6.) SELFISH CONNECTIONS

You better believe that even though I can’t typically make it to my awesome local Mom’s group’s MOM’S NIGHT OUT, that I will be FRONT AND CENTER with a big glass of wine, for the virtual version later this week. I even offered to figure out what tool we should use to make it possible. Because THAT will be a connection where I can vent, laugh, probably cry, and relate to my peers in a really healthy selfish way. Counting down the days ladies. Counting down the days…

Think about these connections as you are sharing things on social media. We’re all scrolling like crazy. Remember the friends I spoke for earlier in this post. And maybe, post with greater grace and understanding for those this impacts, even if you feel like you aren’t one of them…

So, Can I get a connection?… xo

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The Struggle Is Real.

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The Struggle Is Real.

Have you ever found yourself struggling as a parent? Where every time you feel like you finally have it figured out, whatever next age or stage hits and you are back to square one of the struggle? Feeling frustrated, defeated, and completely unsure if you can “do this”?

And then, to make matters worse, every time you ask a parent who is further along age/stage wise, when it is going to get easier, the hardest and most frustrating thing to hear was that it won’t. “Not easier just different” they answer- EVERY time.

Parenting twins with special needs has reiterated that phrase in our lives each time I have found myself questioning if I can “do this”, this weekend being one of those moments. 

The struggle is real. And each time in the heat of those peak struggle moments, where all reasoning is gone and I am left on a mountain of built-up of frustration, fear and anger, I convince myself I can’t. I get lost in resentment of thinking “if this doesn’t get easier, I will never be able to survive this.” Not the autism... not the parenting twins... not the having a third... not the what feels like working three full time jobs (1.) in the job force, 2.) as a mom, and 3.) as a spouse....) the combination of trying to do it all without directions or a rule book... each one of those has been something I could tackle at any given moment, but the combination of all of it on any given day feels like the struggle will defeat me. 

I found myself in a pretty pathetic pity party, crying uncontrollably in the weight of it all, after a typical instance occurred on just an average Saturday afternoon. I lost perspective. I lost patience. I lost my grip. I let my child down because in a moment he needed me, I couldn’t show up.

I then took space. Took a breath. Walked away. Accepted help. And found perspective again. 

Have you ever been in that moment of struggle? Where it feels simply impossible to tackle? If so, for the parent that’s in the struggle like I am, here’s what I’ve learned...

Each time it gets unbearable, it’s because soon you will have to be stronger, in a way you never realized. You are building muscle memory and agility to be able to stay calmer longer, find patience faster, and ...

This is your work out.

This is your more than you can handle.

This is when you are thrown the straw that breaks the horses back.

Because it’s not about if you quit. 

It’s not about if you give up.

It’s not about if the straw breaks you.

It’s about what you do in the after math.

You’re a parent. If you quit or gave up it was momentarily. Reality snapped you back to where you had to keep going.

Muscle memory kicked in of needing to respond to a child’s needs. The behavioral pattern of showing up takes over and you do... just like you have, over and over again... you show up. 

There is always a way...

Can you find it? Can you ask for help if you can’t do it alone? Can you be proud of yourself for being willing to try? 

Remember, when working for that ever important perspective, sometimes it’s merely a matter or can’t vs. won’t, or in this case, can vs. will.

In case this was merely the reminder you needed today, ya’ll... you CAN do this, and for your kids, you know you WILL. 

So pour a cup of coffee or matcha or espresso if you are in my boat, and go get the job done. Because this never-ending journey of parenting waits for no one, and has difficult and exhausting as the struggle can be, the moments uniquely amazing to your journey are yours, and yours alone, to savor and appreciate, only earned and created through the struggle you endured.

You’ve got this. Xo

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Hey, Family!

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Hey, Family!

When I met my wife, particularly when I first began to meet her friends in NH, I learned what the word “family” could really mean. In joking, she and her friends, would use the expression that someone was “family” if they identified a fellow member of the LGBTQ community. Now yes, the word could have so many inflections, that would be far more entertaining in a podcast - ones for if they thought they were attractive “family” or blatantly “family” - you catch the drift. But the concept was one so many of us our community related to, held on to, and tended to find comfort it. It was about recognizing your fellow brother/sister/human, who may or may not have lived through the struggles you did in owning your true self; who know what it feels to avoid glares of judgement or scrutiny; and who knows what it’s like to make daily decisions around how to live your life as “other”. Basically, it was almost like the “jeep wave” for the gay community - the head nod of acceptance - the instant awareness that you aren’t alone - better yet, you aren’t invisible, and I SEE YOU.

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I took my kids to the playground this week, in desperate need to fight the challenges of February vacation where the lack of routine was driving them stir crazy, and their muscles desperately needed to move in the fresh air. It was 9am, so early enough, and much of the playground was still strewn with melting snow. Forty degrees and comfortable, we trekked through the snow to enjoy the swings, the climbing structures, and the many slides. Their cheeks beamed with happiness as they flew down the slides, and let their boots fly through the air as they swung back and forth. 

About twenty minutes into our fun, another family pulled into the parking lot. Two young boys, just slightly older than mine, raced to the playground, as desperate as the twins to soak in whatever sunlight would grace our presence that day. Jack’s eyes watched eagerly as they headed to the climbing structure the twins had ended up on. He looked to me for guidance, and I encouraged he introduced himself. Delighted to have the encouragement, he headed over to the boys and said, “Hi, I’m Jack Y.” - yes, stating only the first letter of his last name, as there is another Jack in the classroom and clearly this is how he is known with his peers. The boys looked at him, but when back to playing together. He tried again, and began to keep pace with them as they climbed to adventure down the slide. 

I was helping Luca climb to one of the higher more adult slides. I wasn’t able to get to Jack right away, because the ladder was slippery from the snow covered boots, and I needed to ensure he safely made it to the top. Jack left impatiently my side, and walked over to the bench, sulking sadly. I took a minute while Luca went down the higher slide, to let him know I would be with him as soon as Luca was down with this one activity, but that I needed to keep him safe because it was slippery. He nodded, understanding, and then looked to his left where the other boys mother had come closer with their younger sister. I smiled, waved, and she said hello. I went back to help Luca one final time, and then all four of our boys headed back toward the swings. 

We got to talking, and she shared that her son was on the spectrum. In return, I shared both my boys were, and she kindly admitted that she had heard how I talked to Jack about needing to be there for Luca in a way that she recognized. Apparently, my behavior felt familiar to her as well.

Her openness in that moment was a “Hey, Family”, and such a comforting one. I had forgotten what it had felt like to be recognized like that by a stranger. We talked for a while as the kids swung on the swings, even exchanging contact information to invite each other to group outings where many mamas of children on the spectrum get together to support each other. Soon, my boys were done, and it was time for us to go. I thanked her for her conversation, and said I’d be in touch soon. 

After I had gotten the twins into the car, and into their car seats, I sat for a moment in the driver’s seat, waiting for the DVD player to load, and just enjoyed that feeling. Since parenting autism, in the months after diagnosis and behavioral patterns have heightened to where my sole focus tends to be on my littles who never stop moving, I feel like there have been times I’ve forgotten to look up for adult human connection. When I’m at a playground with my kids, I’m more worried about what noises may trigger Luca, or if he’ll be patient enough to wait for another child to make their way down a slide, before plowing in front of them, unwilling to wait his turn- or worst, if he uses physical force to make what he wants possible, possible. I had coached Jack that morning to say hello to the new friends at the playground, and although I had looked up to be polite to the other mother- had she not approached me, I’m not sure I would have looked for that connection. Such an important reminder for myself, because those few moments connecting with another parent who wasn’t judging my children, or my parenting, gave me such comfort that I was not alone. That she too, had been wrestling children all morning, and knew the need to risk any snow potential injuries just to get growing boys outside to use their muscles.

Any chance we have to be seen, and to see others, without judgement, and in appreciation for our true selves, is a connection that should not be missed. Hopefully next time, I might be able to provide that to someone else in need… just a little “Hey, Family. I see you. We’re your people. You’re safe here.”

To the following groups in which I feel like I belong, in case you need to feel seen after reading this:

To the parents of little human beings who are trying to work full time: Hey, Family!

To the parents raising magical children with special needs: Hey, Family!

To the women who love the bodies that gave them their babies, but would love to find their body before babies again: Hey, Family!

To the spouses of entrepreneurs who are kicking ass and taking name with their careers, and in support of their achieving their dreams, you are picking up some of the slack at home: Hey, Family!

To the spouses who are trying to make sure their marriage is still a priority while raising a family, and after doing 10 loads of laundry, dishes, cooking, cleaning, etc (the list goes on) still work to make sure their spouse feels like the most important part of their day: Hey, Family!

To the dreamers out there who are constantly working to achieve those dreams, and willing to do whatever it takes to make them happen (for me, become a published author): Hey, Family!

To the members of the LGBTQ community, at whatever stage of happiness this life finds you: Hey, Family!

To the LGBTQ parents who are raising their families in a day and age where although accepted, the constant need to teach and educate those around you can feel like an additional job all in itself: Hey, Family!

To the LGBTQ youth, still trying to figure out your truth, own it, and be safe in owning it: Hey, Family!
*WE SEE YOU, WE ARE HERE FOR YOU, and I PROMISE YOU- IT DOES GET BETTER.

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Feel free to shout out your “family” in the comments, or in social media in a share. We all deserve to feel supported, safe, and a part of bigger. XO





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Can't vs Won't

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Can't vs Won't

Can’t vs Won’t…

It was a typical Saturday morning, wrestling kids over scattered toys in the playroom... too lazy to get out of pajamas, but full of pent up energy as the cold winter weather continues.

The house was a mess, and the playroom looked like it threw up all over itself. Luca was in search of something, but couldn’t communicate exactly what. I followed him out into the kitchen, as I watched his movements become frantic. Asking him if I could help, he replied with “bink” and I said “Ok,” but took a minute to grab a few toys on the floor in the other direction, so I could put them back in the playroom when returned to it, trying to be efficient with my efforts (because when are we not picking up toys!!!). It took a minute too long because when Luca saw that I said I would help, but my actions and body language told him I was saying no, his frustration overwhelmed him for being ignored. As it quickly bubbled over, he turned to notice his little sister walking toward him, pacifier in mouth (unconsciously rubbing it in his face), which set him over the edge. Before we knew it, he went to pull her hair to tell us how mad he was. He pulled so hard that when we separated him seconds later, strands were in between his finger tips.

After calming them both down, getting Luca his bink and putting him in a safe space while being held, comforting Alex separately, apologizing that we couldn’t protect her from just walking through the kitchen, Steph and I looked at each other scared. Luca’s aggression has peaked lately, and his go-to when frustrated is to pull hair. Poor Jack gets the brunt of it. And I can’t imagine how hard it is to be in Luca’s shoes where he has not found the words or understanding on how to safely express his feelings or ask for help to meet his needs, but watches both his brother (who used to share his struggles) and his little sister do so with ease. But as his parents, we are at a loss too. We don’t know how to give him what he needs as we aren’t trained in ABA or therapies to teach a child with learning disabilities to communicate. And what’s harder, is that Luca has the strength of a 5 year old (kid has a six-pack and is crazy strong) but the communication skills of a 2 year-old. Have you ever felt like you were trapped in the wrong body? Poor kid feels it to the extreme every day. 

To try to explain it another way… when we’ve worked with Alex over the last three months, since she begun discovering her sea legs, and becoming incredibly mobile with her sassy waddle, we’ve constantly been on the look out to ensure she avoids all corners to tables not realizing where her head now reaches. As she’s learning to navigate this world, we are constantly working to make her aware of the dangers around every corner, while letting her ride without the training wheels.

When I think of how this relates to Luca… his learning delays almost required him to live life with training wheels permanently attached for the time being, despite that he feels ready to fly without fear of eating pavement - not because he won’t… but because he can’t. He will be five years-old this summer, and his sister who hasn’t even reached her two-year-old birthday, knows how to express her emotions through words with more direct intention than he does. When Alex is sad, she screams, cries and asks for help. When Luca is upset, he bottles it up, holding it in, until he can’t hold it in any longer and it explodes out of him. As he is so introverted, we can completely miss for how long he is frustrated for until it’s so evident that we are in “danger” mode. In the moment it will feel like he’s acting out for no reason, but afterwards, when we retrace our steps, we realize that had we been paying better attention, we could have seen it coming, and more successfully prevented any hurt caused from our lack of notice.

Let me remind you. Luca’s magic is the love that bursts out of that small sweet heart of his. He can be the sweetest, kindest, most caring child. Our son is not a mean or vicious boy, but as we are working to give him the skills it takes to deal with the massive emotion that drives such aggressive acts, we are struggling with remembering and recognizing this one key factor of can’t vs won’t. In the moments we can realize that it’s not a situation of won’t - that he won’t just simply be kind to his sister, or won’t be more patient and trust that I’ll be with him as soon as I can, it gives us the perspective to remember that at this moment in time, he simply can’t be kind when his emotions are erratically racing through his body causing his temperature to feverishly heighten, and can’t wait any longer because maybe this is the 10th time he’s had to compete with two other human’s demands from his mother and at this moment he is tired of waiting. In those moments when we are patient and find grace to breath through any frustration we are feeling with the spiral of effects from this poor child’s moment of defeat, we are able to remember what we can’t vs won’t do as his parents. In those moments we are able to focus on the fact that as mature adults with learned perspective, if we don’t address him to let him know we hear him, it’s not that we can’t be the parents he needs, it’s in that moment, we won’t be the parents he needs, and so we choose to be better. We choose to keep paying attention, keep trying harder, and keep learning what he needs, even if those needs change daily.

We’ve been told by others to discipline the behavior, to put him in a time out, or simply “require more from him.” But I share this because it’s a perspective that may change the way you look any human behavior - understanding if someone can’t vs. won’t in the moment, can help you better determine how you could/should/do react in return. If Luca were to go in a time out, he would laugh- because he laughs when he’s sad or scared. It would not resonate with him, it would have the opposite effect. And heaven forbid he were to be “disciplined” - it would do nothing more than show him that violence is an acceptable response to unwanted behaviors. We can’t expect more from him at this moment in time. That little boy works as hard as he can day in and day out at school with his teachers and friends, and at home with his parents and siblings.

So, we choose to instead, meet him at his level. To remove him safely from the opportunity to hurt someone further. To make sure he knows we weren’t ignoring him and that he has our attention to help calm him down, for as long as he needs. To ensure his sibling(s) are safe from allowing the situation to escalate. Yes, there are times this feels impossible, this weekend being one of them, as Alex felt defenseless, and like a line we weren’t willing to let him cross yet. But in that moment, when we battled our own emotions, we relied on each other to hold ourselves accountable to remember can’t vs won’t.

Because we can be better parents. We can choose to take time to learn more about our son, and everything that he is, not just a diagnosis. We can pay extra attention to his body language, and ensure that when he asks for something, remember that he only asks if he really needs it, so to give it the importance it deserves.

Remember, behavior is communication. Just because someone isn’t using words to speak, doesn’t mean that you can’t hear them, it means you won’t hear them, and are choosing not to. Choose to listen.

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Believe in their Magic...

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Believe in their Magic...

This past weekend, we did not venture out for any adventures with autism… Instead, we stayed home and tackled the following projects: saved a squid from a toilet drain that has been out of service for over a week in the main bathroom downstairs; rearranged the kids playroom, including building additional storage for all of their toys and mounting a new smart TV to the wall; and replaced the washer/dryer that’s also been out of service for over a week.

Some time during the weekend before last, Luca had been watching the scene from Finding Nemo/Dory (can’t remember which one it is) where they get flushed down the toilet to escape. Thanks to YouTube, he became fixated on needing to set many of his friends free to the ocean, and although some of the smaller figurines may have enjoyed the quick flush to places unknown… two squids that were approximately 2”x5” did not fair quite as well.

It was a Saturday, and Luca had proudly been showing his Granny and Pop Pop all his friends, because every Saturday they save our sanity by coming over to help entertain the kiddos during the two-day break from school routine, and most weekends even let Steph and I get out of the house kid-free for a few hours to grab dinner and bring them home take-out (it’s glorious!). Luca had just shown his squids, that are meant to be played with in the bath tub, and then took off with conviction towards the bathroom. In the past he’s loved to wash his toys in the bathroom sink with warm water and soap, so we didn’t think anything of it… until we heard the flush. I swear, the hairs on the back of my neck stood up. I looked in his direction, and then back to the three other adults who didn’t seem to be quite as concerned, before rising from my seat to investigate what may have lost its life to the porcelain swimming pool.

When Luca exited the bathroom empty handed, my heart sunk a little. Nervously I entered where he left, but found the toilet seemingly unchanged. I took a breath, shrugged it off, and exclaimed to the others “Luca is flushing toys down the toilet, no one leave him unattended.”

I can’t remember what then distracted me from my own demands - I think someone needed diapers to be restocked from the basement - but for the 60 seconds I was downstairs, despite that Granny had picked up on the not leaving Luca alone, and followed him only trailing behind him by 20 seconds or so as he darted toward the bathroom to exile another friend - a second squid made it down the toilet. I came up to her laughing saying, “another one bites the dust” and I thought to myself- no way is that going to be good.

We ensured he was not allowed in the bathroom solo for the rest of the evening, went to the extreme of putting a child-lock on the seat, and kept an eye on the toilet which appeared to be unharmed during the mission. We even went to bed thankful that night that it wasn’t one more mess of collateral damage that we’d have to fix due to YouTube teaching our children how to do something destructive.

But the next morning, the first flush at 5am shattered all dreams of a completely unsuccessful mission, as the bath toys that Luca had flushed, had begun to float toward the surface, clogging the toilet. No need to share with you all the dirty details, but that Sunday afternoon we went through TWO snakes trying to get the squids out. The first snake was a VERY old snake from my in-laws house, which in retrospect I wish I had had more sense to realize a really old toilet snake only means one thing - it was used in toilets prior to now- so I highly suggest buying a new one that’s at least only been used on your toilets (if you get my drift) - and then the brand new one that I went to buy at Home Depot after trying to use the other one for a solid thirty minutes, not finding any success, and just pretty grossed out.

Like most battles with fix-it-esq home maintenance, I exhausted my every try, and lost miserably. And then, my wife, entered the battlefield of our bathroom, spent less than five minutes trying to work the snake, and proudly whipped out the first squid. It seriously felt like one of those situations where you work all your strength trying to open a jar of pasta sauce, only to hand it over and have someone release the cap with ease, to which you defend your honor with a “that’s because I loosened it for you”. Yea. As she held back her grin, despite it’s need to beam ear-to-ear in satisfaction, I found every ounce of energy I had left to sass back at her with the reminder there were two squids missing, and she had only found one.

After maybe another 20 minutes realizing she was never going to get it, we commissioned the first floor bathroom out of order, and went back to our Sunday. It wasn’t until the very end of the week that we were able to revisit fixing the porcelain throne, because it required completely removing the toilet, and Steph’s dad’s help. Wouldn’t you believe it though, that the moment they got it off, this is what they saw?

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I swear he’s laughing at us.

The following day, we decided it was time to put together the storage that had been sitting in our basement, to get the kids playroom to the next level. Two additional shelving units, and a TV with mount, meant that at any given time, both Steph and I would be occupied without the ability to entertain a twin while the baby napped. Yes, every instinct I had said to wait until a day when we had an hour while kids were elsewhere, but we had done that for over a month at this point, and it was time to listen to the amazing Mel Robbins, count backwards from 5 and just get the job done.

Yes, it had it’s moments of stress, but Steph’s willingness to teach the boys how to use her power tools, proved to be the highlight of the day. Even Luca wanted to try, and did so with great patience and attention - two qualities we are strategically working on with him. I was doubtful of his ability to be gentle while working on the television- convinced he’d step on it, or get mad and throw the drill at it, but he listened so intently to Steph while she took the time to teach him, that he surprised me. We were able to assemble both bookshelves, mount a new tv, get rid of extra toys they don’t play with, and make more space for them to play.

It was such an important reminder for me that it’s important to keep giving the boys opportunities to prove all doubts wrong - at least until my muscle memory gets rid of all doubt, remembering that only celebrating their magic isn’t good enough - I have to BELIEVE in their magic too. If I’ve learned that part of Luca’s magic is having a heart of gold, and how that fosters his need to take care of who/what matters to him, and belief in doing “whatever it takes”, than I need to remember to think 5 steps ahead at what that could mean for expensive home maintenance, celebrate how beautiful that will be for him when his relationships of importance grow from small figurines to life-changing individuals, but also believe that his small little heart can love so fiercely that nothing will hold him back. **SIGH** I do feel like that heart of gold may actually cost us some gold as his imagination becomes more adventurous, but boys will be boys, right?

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Three Strikes and Birthday Parties...

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Three Strikes and Birthday Parties...

I’ve found that every weekend lately, I’m learning something new about how our family functions with autism. And as the twins are of the age where their friends are all having birthday parties, many weekends are dictated by who is celebrating what, where the event is, if we think our kids could handle it, and if it’s worth all of the domino effect that it will inevitably put into play by attending said friend’s celebration. Yes, I will admit that there are many “school-related” birthday parties that we politely decline because of this domino effect that can require a week’s worth of clean-up due to sensory overload and an overwhelming anxiety attack for the twins that sends them so far off the irregular edge that regularity can literally take days of a routine to remind them, calm them, and re-regulate them. But when one of your best friends is celebrating a birthday, even though it’s at one of the least friendly places for children with autism and sensory issues, you figure out how to show up. 

Towards the end of last week, as Steph and I were gearing up for whatever the weekend would entail, she noticed the birthday invitation reminder on our fridge, and asked me if I thought we should ask our old Nanny to come with us, so we could be 3 vs 3 (three adults vs three kids). Typically, I would have said yes, but for some reason (Insert FOOT IN MOUTH and KICK MY OWN BEHIND), I said, “Babe, these are our people, we will have plenty of friends who can help if we need it. Besides, the kids will follow J & P’s lead, like they always do.” I’m not really sure why I was so confident, as I’m usually far more aware. And, as the very open helicopter parent, my wife just assumed because I said it would be ok, then it would be. This wasn’t just another friend’s party, this was our very best friends party. We would know everyone there, including all the extended family. Our boys knew their extra “uncles” and “aunts”, who were all friends turned into chosen family because of our friendship with the parents, and we knew they knew our family- so we knew if we needed help we could ask. But this, this decision to not bring extra help, would be my Strike One

On Saturday night, Jack was having a hard time wanting to go to bed, so I reminded him that his friend J’s birthday party was the next morning. He LIT up, saying how he was going to hug her and sing her happy birthday, quickly getting into his pjs and tucked under his covers in the hopes falling asleep would bring him closer to celebrating her. He woke up that morning, cheerful and practicing singing, in great anticipation for the party. (Thank goodness it was a 9:15 am party or practicing patience until an afternoon event may have been pretty trying for a Sunday!) He even shared with Luca and Alex about our special trip that morning, and they all practiced singing together.

When we pulled up to the parking lot for the party, we noticed our friends standing outside, hands and arms full of bags, waiting for the event venue to be unlocked. After a few moments, when they were allowed inside, we headed in as well. Cowabunga’s is a large indoor play area, with plenty of jump houses, a maze, some party rooms, and then games, etc. As it would not open to the public for another hour, the music was on low, and there weren’t more than 20 of us inside yet, providing a very low key for our kids to start their morning off at ease. They ran after the birthday girl to play on the maze structure with glee.

I’m not sure why for a moment I stepped off my game, but I saw the stress on my friend’s face, looked to my wife for the nod of the go-ahead, and jumped in to offer my help. The cupcakes had toppled over in the carrier, the cake topper had been forgotten at home on the counter, and she looked at me and said “I may need you to…” to which I immediately I nodded and said of course! She handed me the cake mess, extra frosting, paw patrol rings for toppers, and I went to work. It felt so familiar in this strange comforting way, that I think I stopped worrying about my kids for a beat. (WINCE) Ya’ll… I’m a helicopter parent - there’s a reason why you don’t stop worrying about your kids for a beat - ESPECIALLY in an autism-nightmare of a location. But, I was selfish, because as ridiculous as it sounded - it felt so good to be needed by my friend. As I watched the other moms arrive with their kids - moms from the school where all their kids go together - moms who I watch their relationships with my friend play out on Facebook of all of these amazing trips that only neurotypical families could do - and I watched them smile and laugh about the same eye lashes they had tried out (which sounds so simple but always something that is very “girlfriend-esq” and something that I had missed with my friend for the last few years), I don’t know... something selfish in me wanted to be the friend who was helping with the stupid cake. So instead of checking on my spouse and three children, not doing the math calculating if more moms were arriving, so were their kids, which meant the noise level and body count were rising where my kids were, two key triggers for the twins that could turn a good situation bad very quickly, I focused on frosting cupcakes to be “that friend” who helped her friend in her moment of need. 

I may have spent a total of seven minutes helping my friend re-ice the cupcakes, throw decorations on them, and move them to the party room. SEVEN minutes. Shouldn’t be a big deal. But when those seven selfish minutes were over, I walked back into a very small enclosed space with two large bounce houses that the party had been moved into, with over 30+ kids and their parents, where it was so loud I couldn’t even think, and as my eyes fell on my wife inside a bounce house - the severity of those seven minutes sunk in. It was almost like that scene from Four Christmases (if you haven’t seen it, it’s hilarious, but the scene that played out before me of a grown woman in a bounce house was not bringing on the laughs of Reese Witherspoon chasing down a toddler for the “pee stick” she stole... it was more like in the terrifying way of if my wife is in the bounce house, something is wrong), and as my gaze followed her arm reaching to the top of this very large bounce house, there stood Luca petrified, tears pouring from his eyes over his beat red cheeks, too scared to come down, but frozen and unable to save himself from all the children pushing past him to get to the slide. I quickly felt Alex grasp my legs, and Jack yelling “Mommy” on her coat tails. My wife looked back at the sound of his voice to see my arrival and ya’ll - it was not a great look in my direction - then she refocused on saving Luca. I yelled for him, and when he saw me, he let Steph get him down, and we took our three crying children out of the room to find a quiet spot to calm down in the large portion of the facility. This, this was my Strike Two.

It took a solid 10 minutes of breathing (for everyone, not just the kids), and redirection before we all got back on track. Steph explained that everything had been fine for the first few moments, but as more and more kids had arrived, Alex wanted to keep up with the “big” kids, getting herself into the actual bounce house, which forced Steph to take her gaze away from watching Luca climb the structure, and then to find Jack as she instantly realized he had disappeared to a corner, scared of the noise and extra friends. Steph had quickly asked 6-year-old P (the older sibling of our best friends kids) to go find and comfort Jack while she worked to remove Alex from getting squashed by larger children in the bounce house.

Once P brought Jack back, and Steph had gotten Alex out of the massive blown-up structure, she began to search for Luca again. Unable to find him, she looked to one of our “chosen family” friends and asked him where I was, to which he explained that I had been helping with the cake. She gave him a serious plea to get me quickly, but by the time he had exited the room, I was already on my way in. The thing is… yes, our amazing friends there that day knew us… had been around the kids since they were born… but they didn’t really know the severity of what could have happened in that moment. They didn’t know what kind of danger Luca could have been in at the top of that bounce house if we couldn’t get to him in time. Because unless you are living with autism… unless you are parenting it during some of your children’s most scared moments, most vulnerable experiences, you can’t understand what SEVEN SELFISH MINUTES can mean.

We were beyond grateful that the staff said our kids could play in the larger portion of the space and didn’t have to go back to the small enclosed room. Another mom had headed out with her toddler as well, and so we all played together, enjoying the space in quiet. We watched the kids chase each other up and down the slides, rushing throughout the maze to play hide and seek, eventually discovering the area where they could send soft small balls up an airshaft, into a bucket, that they could eventually release like a rain shower back into the pit. This became the favorite part of the morning. 

The kids played throughout the space for nearly 45 minutes, even after it opened to the public, and families we didn’t know continued to enter the indoor play facility. We followed them in their exploration, ever aware the birthday party was continuing on behind closed doors without us, in a space our kids simply couldn’t function.

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At one point, Luca entered a jump house of two large slides. He explored the area with the ladders that allowed you to climb up to the top, ever curious but too scared to climb.

Thinking he would love the large slide if I could just help him up there, I climbed into the bounce house behind him, and began to help him up the stairs. I didn’t force him, but he held on to me so tightly as we hoisted ourselves to a new height, should have been an indicator to me that he was more scared than excited. At one point, when we were at the very top, he said “No, Mommy, no” and threw his arms around my neck tightly. I reassured him, “I’ve got you buddy, it will be fun!”, and quickly slid our bodies down the slide to the bottom. When we got to the bottom, I looked eagerly at my son, expecting to see pure delight in his face, but my gaze met anything but. “All done,” he said as he wriggled out of my arms, “socks and shoes, buh bye” he finished with. That was it, my Strike Three.

And just like that, what I had expected to be an awesome Sunday, had me benched from that “mom-of-the-year” game, chasing after my son who’s fight or flight risk had kicked in and he was headed toward the door. Although I was able to distract him by the toys for sale until I could grab my wife’s attention, our morning was rushing toward a close. Once all three kids were together, Steph allowed them to look for a toy, and I reentered the private party room, searching for our shoes and jackets, and stealing a quick hug from our friends, apologizing for having to leave in such a rush. We got all three kids layered and shoes on, leaving Steph inside with Jack to pay for the prizes they got for good behavior, so I could exit the building safely, holding Luca to my hip in a way he couldn’t run away from me in the parking lot, letting our Toddler walk herself out of the party holding my hand. Half his age, our neurotypical daughter could control herself with more discipline than her brother, understanding the dangers she faced in a parking lot in a way that Luca simply can’t. When he is in sensory over load, he does not look, he simply runs. He does not get scared about a parent not following him, or not finding him for whatever reason, because he isn’t even scared about or aware of what dangers could face him where he runs. Both Alex and Jack, they look to us when they fear danger - Luca, however, merely runs from it- into the unknown. So when he is in flight mode, the only focus we can have is how to get him safely secure in to the car, until he calms down.

Jack never got to sing Happy Birthday to his friend as she blew out the candles of her four-year-old cake. The moment when we were all in the car, he realized that he missed the ever-important birthday milestone, the one he had practiced all morning to make sure he could do just like the other kids, and became very upset. We promised we’d find a way to celebrate her at another time, even offering to bake her a cake, but there was no consoling this loss for him. Kicking and screaming, crying uncontrollably, he eventually exhausted himself into silence, falling asleep in his chair.

In truth, I could understand what he was feeling. I might not have thrown a temper tantrum, but I knew what it felt like hoping we could have been there when the lights went down and the candles awaited wishes to be blown to celebrate J’s birthday. My selfish seven minutes where I just wanted to be “that friend” again, “that friend” that could be relied on to fix the current disaster, or “that friend” who was in on whatever the “current thing” was - even if it was silly eye lashes - those selfish seven minutes weren’t any different than my four-year old throwing a fit as we drove away from a birthday party he so desperately wanted to attend, but couldn’t really handle. 

I cried on the way home, sharing with my wife how sad I was about how the morning played out, admitting that I was selfish because I missed my friend and was jealous of all the other moms who were living the friendship I thought I’d eventually get to live with the person who I thought would be my “mom-person” during the chapter of raising our kids. I admitted how ridiculous I felt in being proud to have been the person she needed to fix the icing - I mean, it was ICING! How ridiculous is that?

I cried like my four-year-old cried about his disappointment of the day.  I cried as I shared that lately I felt like outside of her (my wife), my best friend was my Mother-In-Law, because she was officially Granny Nanny, and my greatest confidant because I never got out any more. I never had girl’s nights, because they always conflicted with bedtimes for the kids and the kids needed their routine in order to get any sleep, a routine that required I be present from the hours of 6-7pm. Granny watched my children every day after school so that I could continue to work. She understood that their behaviors weren’t something that needed to be “disciplined” and that my parenting wasn’t causing their outbursts, like many liked to judge when they would watch us in public places. She understands that it can take everything you have, on a night after no sleep, to be patient and be what the twins need. We don’t go to salons and get our nails done together. We don’t stop by the mall for a cappuccino and to buy a new blouse. We do drink wine together- but that’s a different story. Granny has become my person because she understands what it is to care for someone with autism in a way that my friends with neurotypical families simply can’t. I couldn’t be more grateful to have someone like that present in my every day.

Steph held my hand and let me cry as we drove home. No judgement, no longer angry that she was the solo parent during my seven selfish moments, and when I was done crying, she simply said, “I get it. It’s ok. It’s just not our life.” She looked over her shoulder quickly and said, “they need us. And you and I, we just aren’t those type of parents who can ignore that.”

Living with autism can be very lonely- for both those with the diagnosis, but also those effected by the diagnosis. As lonely as it can be, I wouldn’t change a thing about it for our family. Next time, I’ll make sure we bring a third adult. I’ll make sure I fully understand what the party structure is like. I’ll make sure I remember it’s a kids birthday party, not a girl’s night out catching up with my best friend, and let someone else take care of the icing. The wins from that day, the really important moments that I would rather focus on, are that our kids over came fears, had so many happy moments, and that Luca was able to tell me when he had had enough. It’s all about perspective. There will be another birthday party where we can do better for our kids. Where we can ensure they get to experience all of the magic of celebrating important moments with their friends, and where Jack gets to sing when the candles get blown out. 

What I learned this weekend was that despite all the challenges we knew we would face, we still showed up. Yes, we couldn’t last very long in the greater scheme of the party, but we were present in attendance for the people we cared about. Yes, I may not be the friend that could set-up all the food, but I am the friend that showed up 10 minutes early and who wanted to be who fixed the cupcakes so my friend didn’t feel alone in the chaotic panic of the moment. Yes, we had to leave early, but we lasted nearly an hour and a half, in one of the most chaotic sensory-overload locations you can think of. The photos we posted that day were of smiling children enjoying a typical childhood experience at a play place. They didn’t capture the images of Luca terrified at the top of a bounce house, or of my wife trying to juggle children while I iced cupcakes, or of Luca trying to escape through the exit, or Jack screaming and crying strapped in his car seat, frustrated he couldn’t just go back in to sing to his friend. It’s not a lie, what we post to social media, it’s the memory we want our children to remember about how we enjoyed their childhood with them. That when their friends had a birthday party, we showed up, had a great time, and made sure they knew we were there. 

And yes, I may have completely struck out, but like any amazing game of baseball, I have the most incredible teammate to rely on for support, for council as I tried to understand what I did wrong, for reassurance that it was only “one up at bat” and who reminded me that we learn something every time we are open to learn. The point is, if we teach our children anything about life, I hope it’s how important it is to show up for the people you care about, even when it scares you or makes you uncomfortable; that anytime you strike out - whether hypothetically - or hopefully, actually playing baseball/softball (because we seriously love baseball/softball!!!) - you can learn something from it, something that will make you stronger and wiser the next time you step up to that plate; and that the very best part about the game of life is who you chose to play alongside, for they show you what being a team truly means.



***For the neurotypical parents reading this, please note, the moral here is to not host your parties at venues like Cowabungas, because that is why those venues exist and 98% of the kids that day enjoyed every aspect of it. This is merely our experience in case others are getting of the age to approach how to handle birthday parties, in the hopes it can help their navigation to make it the best experience possible.

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Weekend Adventures with Autism

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Weekend Adventures with Autism

That title might feel funny read, but I feel like this has been a key survival strategy to making our weekends entertaining, enjoyable, and agreeable to all five members of our family.

My mornings typically start around 4/4:30am with Jack, and then eventually Alex around 5/5:30am. Luca will stroll down the stairs at one point before 6, at which I’ve most likely already had at least one cappuccino. Steph will join the motley crew by 7, and then a full long day is before us.

Although I was always a morning person, the many #sleeplessnightsofautism have definitely made caffeine, and strong caffeine at that, a necessity for functionalities. I’m a planner, so by the time my wife joins our breakfast table adventures, reading books over whatever concoction the three kids decided worked for sustenance, or on the playroom floor playing among too many toys spread across the colorful tiles, I typically have an idea in my head for how I think we could most effectively spend the day. AKA, how we could distract all three kids with something exciting and entertaining, while ensuring the baby takes her two naps, there are decent meals at lunch and dinner, and she and I can agree on a pace that makes us still like each other by the time we get them back to bed. Any one else chase down the daylight hours like this?

As my wife owns her own business, there are usually “work hours” we need to make happen each day, so as long as we can ensure those are taken care of during Alli’s first nap that morning, it leaves a prime six or seven hours to take “an adventure with autism”. The latter disclaimer is because not every adventure is made for our family. We have to ensure the ride won’t be too long, that there won’t be long lines to wait in when at said adventure, that we aren’t near busy streets or in an area where Luca could run away, and that wherever we go won’t overwhelm either of the twins in any sensory fashion (particularly loud and bright activities can create havoc for our boys.)

Some “adventures with autism” require a third party rental adult, whether it be Auntie Sammy, or Granny & Pop Pop, or a favorite baby sitter… those are the ones where we face elements that Luca’s fight/flight mentality could put him in harm’s way, or that the offerings at the adventure hit different preferences for the twins.

This weekend, at around 6am, Steph was up early, and while the kids were enjoying their iPads, we dared throw the news on for a hot second. Across the TV came a plug on WMUR (our local news station) for a new aquarium in northern NH, called Living Shores. It showed hands-on experiences for kids, as well as an Aviary, which is Luca’s favorite thing. (If you follow us on instagram, I’m sure you’ve seen his many bird figurines.) We quickly googled it, and made a game plan to head up just as it was time for Alli to nap, thinking she could do so in the car. We even reached out to friends to come with us.

This is where lack of coffee and planning did not serve us well. Yes, we noted the 2.5 hour drive, but figured if kids napped, they’d be in SUPER good moods when they got there, and if it was over-stimulating, they’d have the ride home to relax. Clearly our friends that we convinced to join us thought the same thing, because they quickly packed their crew up of triplets, and headed north on our coat tails.

We purchased tickets ahead of time, and our first red flag flew when the time-slots available to purchase were only in hour increments. We had gotten the impression this would be an all-day affair, and as it was located within StoryLand, an outdoor theme park, figured it would have a similar amount of entertainment for the kids. But to drive 2.5 hours up, to spend ONE hour at a facility, and over $100 on the day, didn’t necessarily feel like we had our smartest adventurer hats on.

As we realized our start time was at noon, and would be in town by 11:15, we stopped at a local McDonald’s so the kids could have lunch and stretch their legs in the play place. Luca ran right to the maze, despite the kids that were playing in it already were some what loud. I could feel my chest rise in anxiety worried the noise would set him off, and watching the maze rise upwards of 15 feet, with very small enclosures to climb through, I wasn’t quite sure I’d be able to get to Luca in time if he became impatient trying to navigate past another child, or worst, if the noise echoing through the slides hurt his ears and he decided to go after said noisemaker. My wife gave me a look like, “please don’t make this more than it needs to be”, so I found a table with Jack and Alex so she could go get their lunch.

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Jack was extremely hesitant to play, and despite taking his shoes off and entering the maze, he made it about two minutes before he preferred to sit at the table with Alex and I and wait for his lunch. Luca played for a solid 30 minutes, continuing to run the maze/gauntlet with comforting repetition. It was so good for him to move his body. He is always happier when he can take on physical activity. Jack contently ate his lunch with Alex, and we ended up taking Luca’s in the car for him to eat on the remaining 10 minute drive to the Aquarium.

When we made it to Living Shores, the facility itself seemed small. I quickly realized we underestimated just what the day could entail, but thought it would be best to make the best of what we could, so we tried to amp the kids up and bring them all inside.

From the moment inside, Jack got very scared, and when Jack gets scared, he tends to get dramatically so. His voice will elevate, panic sets in both his tone and on his face, and he starts to search for ways to leave- whether by throwing a tantrum, or finding an exit himself. We did everything we could to keep them calm as we waited in the line to enter the facility.

We kindly asked the lovely gentleman taking photos before you entered to allow us to skip the line, as Jack was obviously not having it. Once inside, Luca lit up, walking directly to the walls of fish tanks on display. He could have watched them swim for hours, completely intrigued in their movements and grace. Alli stood beside him, glee and delight spilling out joyfully in her expressions, but my buddy Jack huddled behind my legs, holding on for dear life.

Steph moved ahead with Luca and Alex to give Jack and I space, and I did my very best to breath through my own panic that we had made a grave mistake bringing our children so far without doing enough research into what it would really entail. Jack and I talked through how he was feeling, and I assured him I would not leave him, and we would take it at his pace. I also reminded him friends were coming soon, and if he wanted to wait near the entrance for them, we could do that. That seemed to relax him enough so that he could start to enjoy the tanks of fish.

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It didn’t take long before Luca could hear the birds, as they weren’t more than ten feet from the tanks. Steph moved ahead and brought Luca and Alex to explore the aviary. I could hear his giggles when he entered the cage from where I stood with Jack down the hall. My heart sunk for a moment as I realized that here was an experience that could bring one brother such joy, and the other such pain. I stayed focused on Jack, who was hiding in the stroller, and kept watch for our friends.

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Eventually, our entire party was present, and we worked our way through the small facility of hands-on learning with the kids. Steph switched with me, bringing Alex with her, so that I could enjoy Luca’s delight and new obsession with one particular bird, who was very friendly. Luca could not get enough.

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It was such a different experience to watch his fear meet his excitement, turning into fearlessness and he worked to convince the bird to come to him. He watched the trainer as he reached out his arms and allowed the bird to climb over him. Luca would mimmic his movements, continuing to move closer and attempt to touch the bird. He was experiencing such joy.

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There were also tanks where you could touch the sharks, or let fish nibble at your hands. And the kids loved the sandbox with the animated sea creatures that appeared from an overhead projection.

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For families considering visiting Living Shores in Glen, NH, it’s located in the Story Land parking lot, and I would say that it’s well maintained, entertaining, wonderfully staffed, and great for what it is. If you have to drive a distance, I would suggest pairing it with another activity for littles, unless you are focused on littles who could spend hours in an aviary staring at one bird, like Luca could have if we let him.

It was yet another learning experience on one of our “weekend adventures with autism”, but different, and worth the pure joy we watched Luca experience.

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